Huntington Disease Community Education Day
Saturday, May 4, 2013 - Richmond, VA
This program is co-sponsored by the VCU Parkinson's and Movement Disorders Center and HDSA Center of Excellence at the University of Virginia.
Members of the Huntington Disease community are invited to attend this conference to learn about advances in clinical care and research, and how to identify resources to improve quality of life. The program features presentations by Dr. Karen Anderson from the Georgetown University HD Care, Education and Research Center and by Dr. Madaline Harrison from the HDSA Center of Excellence at the University of Virginia. They will discuss advances in HD research and clinical care. Breakout sessions will be offered for caregivers, people with HD, and at-risk individuals. Anyone interested in learning more about HD is welcome to attend.
Saturday, May 4, 2013 - 10:45am - 4:15pm
$10 per person - includes lunch, parking, and materials (scholarships available)
The event co-sponsors are committed to ensuring that all who wish to participate in the conference can attend. Scholarships are available for those who are unable to pay the registration fee. Please contact Andrea Perseghin at (804) 828-3747 or email@example.com if you would like to learn more about scholarships.
The meeting will be held at the Larrick Student Center, 901 Turpin Street, Richmond. More information, including directions and a map, will be sent with registration confirmation.
If you can volunteer to help with arrangements on the day of the meeting, please contact Andrea Perseghin at (804) 828-3747 or firstname.lastname@example.org.
10:45 AM – Registration opens
11:15 – Opening Remarks
11:30 – What’s New in HD Research - Dr. Karen Anderson, Director, Georgetown Huntington’s Disease Care, Education & Research Center
12:30 – Lunch – Updates from the HDSA Chapter and Virginia Beach Support Group - a catered box lunch will be provided to all registered participants
1:15 – Advances in Clinical Care for Huntington Disease - Dr. Madaline Harrison, Director, HDSA Center of Excellence at the University of Virginia
2:15 – Break
2:30 – Break out sessions – Each session will include a 15-minute break. Please select one.
(A) Enrichment Session – this session includes several activities designed for individuals with HD and those who are interested.
- Laughter Yoga led by Estelle Brodeur, Mindbody Health of Richmond
- Music Therapy led by Fern Cohen, MEd, CCC-SP, VCU Parkinson's and Movement Disorders Center
- Occupational Therapy resources by VCU Department of Occupational Therapy
(B) Care for the Caregivers – Dr. Sarah Lageman, VCU Parkinson's and Movement Disorders Center, a licensed neuropsychologist will work with participants to develop coping strategies for caregivers to handle the stress associated with providing support to a person with HD
(C) Practical information – this session includes practical information that may be useful for anyone impacted by HD
- Finding Help and Paying for It – Kenneth L. Cady, MSW, LSW, University of Virginia; and Drew Yeannakis of Disability Claims Representatives will discuss the spectrum of care available and how to apply for Social Security Disability, Medicare and Medicaid
- Presymptomatic testing – What you need to know before making a decision about testing – Dr. Adam Rosenblatt, VCU Parkinson's and Movement Disorders Center will lead a discussion about presymptomatic testing and things to consider before making a decision.
4:15 – Adjourn
This program is supported by an unrestricted medical education grant from Lundbeck.